In part 4, the conclusion of this Exclusive Interview, Dr. Julia Greenstein talks with Diabetes in Control Publisher Steve Freed during the ADA meeting in San Diego, California about the name and mission of the JDRF.
Dr. Julia Greenstein, PhD, is the Vice President of Discovery Research at the JDRF.
Transcript of this video segment:
Steve Freed: Well you know I always felt, when I sit down with a type 1 patient, I say it’s really critical that you take care of yourself. That you monitor your blood sugars, you take your medicine when you need to, eat a healthier diet, be more physically active. If you can do that for the next ten years, you won’t have to worry about it anymore because hopefully we’ll have a cure by then. But god forbid you lose your kidneys and your eyesight and your limbs and they come out with a cure the next day, there’s nothing they can do, so you need to work hard and have a better life so when they do have a possible cure, that you’re going to be able to benefit from it.
Julia Greenstein: I mean that’s JDRF’s current strategy. We need to keep people with type 1 diabetes healthy. We have to make their lives easier. We have to make it easier for them to achieve the clinical goals that their physicians want them to achieve and we have to continue to fund enough work so we can prevent and cure this disease in the future.
Steve Freed: You know I was always mystified by the name that you gave to your organization, “Juvenile Diabetes.” When somebody hears that title they think well it has to do with kids, but we’re seeing much more from older people that get type 1 diabetes. So, any consideration in changing your name?
Julia Greenstein: Well you know it has been discussed but people recognize JDRF. It’s why we’ve gone to referring to ourselves as JDRF rather than sort of saying out “Juvenile Type 1 Diabetes Research Foundation.” But you know we’re now seeing 50% probably of diagnosis, first diagnosis, is in people over 18, so you’re right it’s not just a disease of children. It was certainly started by two moms of kids with type 1 diabetes and we’re probably even underestimating that because we hear stories all the time of people, especially adults, being misdiagnosed at the beginning. Type 1 and type 2 are really hard to diagnose in the adult population and that’s another important thing that our researchers are working on is trying to help the physicians diagnose type 1 and type 2 better.
Steve Freed: I want to thank you for your time.
Julia Greenstein: Thank you.
Steve Freed: Certainly I always find it interesting. You guys are at the head of motivating people to do more research and hopefully the NIH won’t drop all their funds or at least cut it in half. We’ll see what’s going to happen soon.
Julia Greenstein: Well we look forward to working forward with the NIH and with other government organizations like it.
Steve Freed: Well thanks again. Enjoy your time here.
Julia Greenstein: Thank you.